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ADD/ADHD Forums
A good source of information for adults and children with ADD, parents, teachers and friends. Information on parenting, medications, and much more.
Beach Center on Family and Disability
Lots of helpful information here, including a great links page that is the source of many of the links you will find here.
The Care Notebook
The Care Notebook and Care Organizer are tools for families who have children with special health care needs. Families use Care Notebooks to keep track of important information about their child's health and care. This makes it easier to find and share key information with their child's care team. It was created by The Center for Children with Special Needs and is available at their web site (click above). If you have questions about any of these files or for questions about adapting or reprinting the Care Notebook, contact Megan Sety.
Disability In the Family
Lisa Lieberman has written a great book that is a comprehensive guide to
hiring in-home support for children and young adults with disabilities
called A Stranger Among Us, AAPC, 2005. She is a counselor in private
practice, a trainer and national speaker. She's also mom to Jordan
Ackerson, a wonderful young man who has a label of autism and a
promising future as a public speaker, as well. Check out her website for
a variety of articles and to find out more about her services.
Disability is Natural
Kathie Snow's book Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities is just that -- revolutionary common sense. A great book. And a great site for parents and advocates!
Family Center on Technology and Disabilities
The Center serves organizations and programs that work with families of children who experience disabilities. They offer a range of information and services on the subject of assistive technology to the individual, parent, educator, or interested friend.
Family-Friendly Fun.com
Family-Friendly Fun.com contains all kinds of helpful information for families with children who experience disabilities. Help with everything from relationships to gardening.
Family Village Project
Family Village Project is a user-friendly website that provides lots of resources about specific disabilities and resources, as well as Latino, African American, Asian American, and Native American Resources. Also contains great links to worldwide resources.
Family Voices
Family Voices is a national grassroots organization directed by parents of children/adults with special health care needs, and composed of families and professional friends who care about and care for children with special health care needs. Every state has a Family Voices coordinator who assists families at the local and state levels. The national Family Voices office can provide you with the name of the Family Voices coordinator in your state.
Father's Network
The National Father's Network provides information, support, and resources to fathers of children with disabilities or chronic illness. Supporting the efforts of 83 fathers' programs in the United States, the National Fathers' network publishes a bi-yearly newsletter, a monthly column in Exceptional Parent magazine.
The Healing Heart: Storytelling to Encourage Caring and Healthy Families
"Packed with folk tales, personal stories, exercises, games, songs, and lessons learned, The Healing Heart (2003) by Allison Cox and David Albert provides powerful examples of the use of stories and storytelling in encouraging resiliency, healthful behaviors, self-esteem, and mutual respect." Highly recommended. Can be ordered by clicking above for approximately $20 US and $28 Canadian.
Institute for Family-Centered Care
Family-centered care is an approach to health care that offers a new way of thinking about relationships between families and health care providers. The Institute serves as a central resource for both family members and members of the health care field.
Life Success for Children with Learning Disabilities: A Parent Guide
This guide is based on over 20 years of research conducted by the Frostig Center in Pasadena, Calif. The research traced the lives of individuals with learning disabilities in an attempt to identify factors that predicted successful life outcomes.
National Center for Family Support
A great source of information about implementation of family support projects, particularly from at the state policy level.
Orelena Hawks Puckett Institute
The Orelena Hawks Puckett Institute is a not-for-profit organization engaging in activities that enhance and promote healthy child, parent and family functioning. The Institute's web page is a great reource for information about family-centered planning, featuring the work of Carl Dunst and others.
PACER (Parent Advocacy Coalition for Educational Rights)
The mission of the PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents. A great source of information about topics ranging from parent advocacy to employment strategies.
Parent Advocates.org
The Parent Advocate web site is an information nexus for resources on publicly funded education programs, policies, and schools in the United States with stories of whistleblowers working at the local level to challenge those in power who are not helping the children they are paid by our taxpayer money to serve...so begins the description of this compelling web site that confronts injustice head on.
Parents Helping Parents
The mission of Parents Helping Parents says it all: "Helping children receive the resources, love, hope, respect, health care, education, and other services they need to achieve their full potential by providing them with strong families and dedicated professionals to serve them."
Partners In Policymaking
First started by the folks of the Minnesota Governor's Council on Developmental Disabilities, Partners is now a world-wide organization that helps people who experience disabilities and family members to partner with policy makers for real change.
Parents with Disabilities Online
The name says it all. Check out this site for lots of helpful information.
Parent To Parent of New York State
A place where families of individuals who experience disabilities and the professionals who serve them can meet and share information.
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