The Care Notebook www.dimagine.com
The Care Notebook and Care Organizer are tools for families who have children with special health care needs. Families use Care Notebooks to keep track of important information about their child's health and care. This makes it easier to find and share key information with their child's care team. It was created by The Center for Children with Special Needs and is available at their web site (click above). If you have questions about any of these files or for questions about adapting or reprinting the Care Notebook, contact Megan Sety.
If you own a handheld computer and want to keep track medications and their side-effects, you might want to purchase a copy of PDRDrugs (based on the 2002 edition of the Physician's Desk Reference). PDRDrugs is used by many healthcare professionals and is an excellent source for data on generic and over-the-counter drugs. Available in demo versions with free trials. (Description: PocketPC, May, 2003)
Ever wonder how all a person's medications work together? Are there any reason why a particular reason why a medication should not be taken in combination with others? Check it out at this helpful web site. Note: Not all drug interactions are known or reported in the literature, and new drug interactions are continually being reported. This information is provided only for your education and for you to discuss with your personal healthcare provider.
Previously, this page contained a variety of mental health links. These sites have been moved to a separate section about "dual-diagnosis" issues.
Healthy People 2010
Disability status is typically equated with health status. "The
health and well-being of people with disabilities has been addressed
primarily in a medical care, rehabilitation, and long-term care financing context," says the National Centers for Disease Control, which is now making an effort to include people with disabilities in its entire public health agenda.
Its "Healthy People 2010" program, a set of health objectives for the
nation released in January, 2000, now includes objectives for people
with disabilities. ("Healthy People 2000" did not have a chapter specifically establishing public health objectives for people with disabilities.) HP 2010's Chapter 6, on health issues of people with
disabilities in the U.S., is available online. Click above. (Text provided by Leslie Daniel, President of Virginia TASH).
Institute for Family-Centered Care
Family-centered care is an approach to health care that offers a new way of thinking about relationships between families and health care providers. The Institute serves as a central resource for both family members and members of the health care field.
McGowan Consultants is a Georgia-based consulting firm specializing in training, evaluation, publications, and technical assistance to organizations serving individuals with complex developmental disabilities, mental retardation, cerebral palsy and challenging health problems. McGowan is one of the originators of the person centered planning process. Check out their helpful resources for thinking about and organizing medical information.
Medline Plus Health Information
The National Library of Medicine and National Institute on Health web site. A great source of information about medications and their interactions.
The Merck Pharmaceutical Company provides free online access to its award winning "Merck Manual of Medical Information." A very helpful resource for understanding various medical conditions and their treatment.
National Center for Complementary and Alternative Medicine
Western medicine has a great deal to offer, but it is not the only route to well-being. There are many sound complementary and alternative approaches to well being. At the same time, there are some approaches that can be dangerous without careful consideration. Check out this great site for sound information and resources that go beyond traditional medicine.
Network of Care and Supports for Behavioral Health and Mental Retardation Services
The City of Philadelphia has done a great job in creating a web site that "is a resource for individuals, families, and agencies concerned with behavioral health and mental retardation services. It provides information about behavioral health and mental retardation services, laws, and related news, as well as communication tools and other features." I really like the links section and the medication library (click on Library--Medications). Very well done site. "This web site can greatly assist in our efforts to protect our greatest human asset -- our beautiful minds."
Philadelphia Coordinated Health Care Services (PCHC)
The folks at PCHC do a wonderful job helping people to organize health care information. If you are trying to sort out and organize health care information, contact them for a free copy of their Health Information Referral System (HIRS). The system is currently being beta tested for use on computers. Contact PCHC at (215) 546-0300.
Self-Injury -- You Are Not The Only One
As Deb Martinson writes in her introduction to this fine site, "In spite of the title, there is no shame here. A welcome self-help site for people who hurt themselves, including bulletin boards, personal stories and helpful information about the connection between self-injury and Post Traumatic Stress Disorder.
Surgeon General's Report -- Closing the Gap
In February 2002, Surgeon General David Satcher wrote a scathing report about the state of health care for people with developmental disabilities in the United States. You can download the report entitled "Closing the Gap" by clicking above.
Another good source of information about prescription drugs. Includes an alphabetized listing of various medications and even herbal remedies.
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